Posted in Corona, Family, Job, School

Getting Whiplash Over Here

So, unless you’ve been living under a rock, or maybe on a spiritual retreat in the deepest part of the Amazon, you’ve heard of Coronavirus. In fact, if you are anything like me, you’re probably UP TO HERE with hearing about it! Like many, many families, we have been impacted by it.

  1. Laura is home from West Chester University. She came home for her scheduled spring break and then they extended it until March 30, when she will restart all her classes, except everything will be cyber. You know, like the past 6 years of her schooling.
  2. Jim’s company is doing mandatory work-from-home Fridays, except his boss warned him that he might not be working in the building as of Monday either. Thankfully, Jim’s job is one that can be done from home (unlike mine).
  3. Our area stores are out of TP. And water. And OJ. It’s stupid, y’all.

So, yeah. Wash your hands (sing the Happy Birthday song 2x and you’ll be good) and stay sane! And healthy.

Posted in Health, Kids, School, To Do List

Summer is Full and Flying By

Sorry for the lack of posting! The last time I posted was June 17. We had celebrated the graduation of Bennett and Laura.

Since then: hosting the largest party I’ve ever hosted for the graduation, TONS of doctor appointments, meeting with our lawyer to set up a special needs trust for another Laura, dropping off Ethan at camp, picking him up after him having a great week, meeting with our future autism services people, dropping off Ethan at TVI (Transition Vocational Initiative) at Overbrook for three weeks, doing med checks and changing meds for the girls, Laura as of today being on the full dose of anti-seizure meds (and therefore sleeping a TON as her body acclimates), buying college stuff for Laura (surprisingly fun!), helping Bennett get a job at Wawa (VERY popular local version of 7-11 for you out of the area people), helping him fill out paperwork and needing to go and buy non-slip shoes, dropping off Catie and picking up Catie every week day from her junior counselor job, figuring out college loans, dealing with Jim working late pretty much all the time for until mid-September…

I somehow thought this summer would be quieter! We only have five weeks left until Laura moves out (it’s FLYING by so quickly as the title says!), and a few days short of seven weeks until school starts for the two attending. TWO? TWO!

Which is why I’m looking for a job. What in the world will I do with myself with only two kids to worry about?!

 

Posted in Health, Kids, School

Where Do I Begin?

I made my counselor cry on Monday. Seriously. Because she saw how much I’m carrying and how self-sufficient I’m being and she feels so badly for me.

I feel like I’ve attained a new level when I can make my counselor cry.

Nitty Gritty Details:

Daughter who was doing partial hospitalization program successfully completed it and also completed four-day-a-week group program and is down to once a week counseling again. Except, she can’t because she just had her 2nd seizure. We meet with neurology in an hour to get more info, but she’s on an anticonvulsant and has a rescue med as well.

I have two kids finishing senior year in 9 days. Whether both can finish all their work on time I’m unsure, but here’s hoping.

Tomorrow I meet with Ethan’s new governmental agency–the autism waiver people–to see what they can offer him now and in the future.

Jim and I met with a disability life planner on Monday to start the social security paperwork process. There’s a LOT between Ethan and Laura.

Yesterday (after the above meeting) I emailed our lawyer to update our wills to add another special needs trust. Everything needs to be redone.

Took the seizure daughter to the pediatrician yesterday and also got a boatload of bloodwork done. SIX VIALS of BLOOD. Yowza.

This morning I returned the majority of the hardware and books for cyber school because of the two graduating seniors.

Tomorrow is Laura’s spring art show and Ethan’s spring concert.  Always on the same day. We will manage it, but will need to drop off the girls in between so one can rest her brain and the other can babysit her.

There’s always other miscellaneous stuff going on, but that’s the major stuff. I just want to get off the merry go round, people. Does it ever stop??!!

Posted in House, Kids, Me, School

It’s Busy Season Around Here

Sorry for the complete lack of posting. I just checked and it’s been more than a month since my last post. My only defense is: my, we are busy around here! Between school, keeping house, laundry (aka the bane of my existence), home improvements (current: upstairs hall bathroom) and just general STUFF, I’m doing a lot. So the blogging suffers.

Let’s see….Ethan’s IEP went great (as always) and his testing just got completed and we got the paperwork. Lots and lots of pages and deciphering of information, but the bottom line is: Ethan is NOT intellectually disabled. He has definite issues, but they “can be explained by the autism and visual impairment.”  So, good. I just got information yesterday from a friend about training through the state on technology for the visually impaired. Totally making THAT call today!

We’re just about to finish up the 3rd marking period at cyber school and have 11 weeks left (including a week of spring break!). I’m definitely worried about one child who is struggling way more than I expected. (More on that in another post.) My other two are doing well….it’s just lasting until the final day.

We’ve scheduled our vacation. Every other year we make the really long trek to Lake Michigan. It’s only every other year for a couple of reasons: 1) there’s so much else in the world to see and 2) it’s a really, REALLY long drive. 12 hours at least the first day and then more driving the 2nd, plus a 2.5 hour ferry ride. So yeah, I just can’t face that every year. But this year it’s been long enough that I’ve forgotten the agony and am just anticipating 9 whole days on an island with hardly anything to do. Bliss!

The Upstairs Hall Bathroom Project is coming along slowly. Much more slowly than I had expected. The tub resurfacing saga has definitely slowed it down even further. March 6th, the much anticipated day when a company would come in and resurface our tub, taking it from ugly yellowy-tan to lovely white. Well, it was white in the end, but R did a horrible job. We complained. They sent R back. He did an even worse job. We were angry and complained again. The company was going to send H out last week, but then he had a personal emergency. But they didn’t call us to tell us. So we waited for several hours. So NOT impressed with this company. Finally H came yesterday and was horrified with the job that R did. He fixed everything and now work on the rest of the bathroom can begin again.

I know it’s more of a status update. Again, posts coming up, but I just wanted to let you know that I wasn’t–as my mom often feared–dead in a ditch somewhere.

Posted in Kids, School

The Gaping Chasm

It’s IEP (Individual Education Plan) season again. An IEP, for those who don’t know, is a written-down-and-must-be-followed plan for a special-needs’ child. It tells about the child–their strengths and weaknesses. It tells where they need to improve. It makes plans for that improvement and the specific steps to follow for that planned improvement.

I just had Ethan’s 2 hour one last week and will have Laura’s much-shorter one this week. Because the kids will turn 14 within the next year they both will attend their IEP’s for the first time.

Each year I’m both filled with joy and awe AND a totally overwhelmed feeling. I see where these kids began; I see just how far they’ve come. I also don’t see the future. It’s this giant, gaping chasm of ignorance, lack of control and just plain old fear. Not so much with Laura, because intellectually she’s just fine. She will go to college. She will be able to support herself.

Ethan? Who the heck knows?

We made the decision to have his IQ tested. While the school psychologist will not be able to give us a number, she will give us a “he will qualify for ID services” or “he will not qualify for ID services” (ID being intellectually disabled).

It’s the same sword we played with all those years ago when we got the autism diagnosis. Ethan had all these quirky things–things that, to me, were disparate and didn’t fit together. The developmental pediatrician at duPont heard my list and said almost immediately that she thought he was on the spectrum. I was stunned. Somewhat horrified. But still, glad for the tentative diagnosis. All her tests were vision-based, so we went to the school psychologist and he confirmed with his testing that Ethan was autistic. High-functioning, but still, autistic.

So, fast forward some years and that’s where we are. The double-edged sword of a diagnosis. We don’t WANT him to qualify for ID services. We don’t WANT him to BE intellectually disabled. But if he IS, then we want what he would qualify for–services, support, help, planning, etc.

And the future continues to be a big, gaping, scary chasm of unknowing.

Posted in 7 Quick Takes, Family, Kids, School

7 Quick Takes Friday

1. I know, I know, it’s been awhile. Sorry! End of summer + beginning of school year + a death in the family = blogging going out the door.

2. My husband’s grandmother, Grammy, passed away in August. That he HAD a grandmother at 45 is amazing to me. My one and only grandparent, Nana, died when I was 6. So when I married this wonderful man who just happened to have four living grandparents it was incredible to me. Not only that, but the ones who lived near us were terrific people. I LOVED having adopted grandparents. It filled a hole that I didn’t know I had. Five years ago or so we said good-bye to his grandfather and now have said farewell to his grandmother. The memorial service was so wonderful–she was much loved and everyone had kind things to say. Yeah, there were some funny stories, but overall the tone was one of respect and fondness for a delightful woman. You will be missed, Grammy.

3. The beginning of school has been hectic. New carpools, new schools, unexpected purchases of school items because the gifted school wants them….I really don’t miss public school. Really. But sometimes I miss that bright yellow school bus. And being alone. I’m NEVER ALONE.

4. Many years ago I attempted to be an ebay seller. Didn’t last long. Craigslist is hard because we are between the Philadelphia and Lancaster sites. Enter Facebook! Our local area has at least four FB selling sites. It’s WONDERFUL. I can buy and sell and meet the person at the local WalMart. So far I haven’t had a bad experience, which is saying something!

5. This past month we also had 6 trees removed. Five were really, really ugly pine trees lining the right backyard. The original owner planted them as Christmas trees. And they were ok until they grew and grew and grew and YUCK. The 6th was a pin oak that we actually liked, but it more than halfway died in the brutal winter of 2013-2014. Now we just have little humps of ground up stumps, which will rot away and get covered with grass seed next year or so. And our backyard looks massive!

6. I’ve got my coffee drinking down to science now. And this is huge for a former die-hard tea drinker. I completely blame Keurig. They made it possible for me to have one cup of coffee, mad with the light roast that I like. I add two level teaspoons of sugar and..ahem…three tablespoons of light cream. And that makes coffee taste wonderful. I know I can’t actually TASTE the coffee…that’s the point. Coffee does not taste good. But boy is that caffeine hit amazing!

7. Something else that happened in August that’s rather noteworthy: My triplets turned 13. Yes, people, I have three teenagers and one tween. Two of the kids are already taller than me, one is only a half-inch shorter and the youngest is only an inch shorter. THIS is why I married a tall man! I wanted to give those kids a fighting chance at some height!

Posted in 7 Quick Takes, Health, Kids, School, Sick

7 Quick Takes Friday

7 Quick Takes Friday

 

Last week’s #1 topic was my sickness. If you are grossed out by grossness, don’t read this week’s #1.

1. So last Friday I posted that I was on Day 14 of being sick. I hadn’t gone to the doctors, not because I’m anti-doctor, but because it really just felt like an annoyingly long virus that I needed to last through. Saturday morning, though, I got up and took a shower. I felt worse–like my health was going downhill instead of up. I blew my nose and it was BRIGHT (like the 7 Quick Takes label bright) yellow. YUCK. I went to walk-in hours at my doctors and lo and behold! I had a sinus infection! WooHoo! Z-pack to the rescue! (I’m allergic to penicillin).

2. Within 48 hours of starting the Z-pack I felt like a different person. My voice was back, instead of sounding like someone who had smoked for 75 years. I wasn’t coughing all day every day. My energy was back. I would say that today, Day 21, that I’m at 95%. I’m still needing to keep tissue boxes handy, but I cleaned and vacuumed the living room yesterday AND started washing the couch cushion upholstery that got chicken broth spilled on it on Day TWO of this whole fiasco.

3. I’m not one to talk about products (no one is paying me for it!), but I wanted to gush a little bit this morning about a new hair care product we just stumbled upon. I got a free sample in the mail yesterday of Cantu Coconut Curling Cream. It’s AMAZING. Our daily issue is Laura’s hair. She got my curls and Jim’s crazy-thick hair. This has been the bane of our mornings for YEARS. We’ve been working with a stylist with a good cut, growing it out to try and pull some of the curl down (so far that’s not working!) and trying product after product. Before we found this, gel seemed to be the best answer, except it left her hair sticky or crunchy, neither of which is good. This morning she showered and toweled dry her hair. I put the conditioner in and blew it dry a little on low (because she was leaving the house and it’s 10 degrees out!). Her hair looks, feels and smells AMAZING. I’m already trying to find it online (WalMart carries it, but not in our local store). If you have thick and curly hair, I HIGHLY recommend this!

4. I ventured out after our snowstorm to Bella Med Spa for my consult and first laser hair treatment. After talking with the technician, I opted not to do my upper lip. There wasn’t enough dark hair to see a good return for the money. The technician said some people think it feels like tweezing (no big deal) and others feel like it’s needles being stuck into the follicles. I unfortunately fell into the latter category. She rubbed an ice cube on a part of my chin and then immediately lasered it. OUCH OUCH OUCH OUCH OUCH. And that was on a low setting! I smelled a burning hair smell (lovely) and managed to just grit my teeth and bear it. After 2 hours there was no pain or itching and the spot just felt like my chin again. It’s worth it to me, in the end, for no daily plucking.  I go again March 7th.

5. The above-mentioned snowstorm netted our area about 8-10 inches and two snow days. We are now up to four snow days and I’m guessing they are going to start taking days from their spring vacation. Which is already short. Another reason to like cyber school. No snow days!

6. Jim and I were talking yesterday about weather in general, and how the weather channel tries to hoop everything into a bigger deal than it really is. Naming a winter storm, for heavens sake! I’m 45 and still can remember days out at the bus stop waiting in single digit weather. Or in the snow. Sure it was freezing (literally!), but it was winter and you dealt with it. Now it’s a polar vortex and Winter Storm Janus and we must FREAK OUT ABOUT IT. Oh brother!

7. I emailed Catie’s every day teacher and her gifted teacher, asking them if they would fill out teacher recommendations for the application process for the gifted program of PALCS. I haven’t heard back yet from her regular teacher, because she’s out sick. Her gifted teacher’s response was as follows (direct quote):

“Thank you for thinking of me with your request.  Unfortunately I will not be able to help you.  I am not a proponent of charter schools and can not support one.  I wish Catie the best of luck as she continues her schooling and will be happy to help you in the future if it doesn’t require that I aid a charter school.”

Wow. Just…..Wow. I instead emailed her teacher from last year and she was quick to respond that she was thrilled to give Cate the recommendation she needed.