Posted in Health, Kids

Neurology Out, Psychiatry In

So, in the good news/bad news front, the EEG and MRI are both done and both show only the expected. Which is:

Periventricular leukomalacia (PVL) is a type of brain injury that affects premature infants. The condition involves the death of small areas of brain tissue around fluid-filled areas called ventricles. The damage creates “holes” in the brain. “Leuko” refers to the brain’s white matter. “Periventricular” refers to the area around the ventricles.

(Quick Back Story: My first pregnancy was quadruplets (please feel free to read back posts for more about that!), which ended in a premature birth at 25 6/7 weeks. Baby A, Connor, passed away about 12 hours later. The other three all had various and sundry issues from the birth, one of which was called Intraventricular Hemorrhage, or a brain bleed. Bennett’s was a Grade II, aka NO BIG DEAL. Laura and Ethan both had a Grade IV, or THE WORST POSSIBLE. The neonatologist said there was a possibility of a “vegetative state”. Which, obviously didn’t happen, thank the Good Lord.)
The MRI only showed the results of that prematuring, and the EEG basically showed the same thing. So, what’s going on with Laura is NOT neurologically based (as far as they know), it’s more psychological.
What that means, at least to me as a parent, is that we need to step it up a notch with the psychiatrist. Our current one, well….he’s ok. We see him because we have to. The practice has hired a woman who is an adolescent psychiatrist (YAY!), but she’s still going through the process of getting approved by insurance companies. Which is no bueno at this point, because that can take up to three months and Laura can’t wait that long.
I have a call into the secretary at the practice to see where she is in that process, and am investigating other options. Unfortunately, our insurance company’s website is not that great when it comes to specific information about doctors–they can give me general psychiatrists, but not specifically adolescent ones. Sigh. I want Laura to be doing better. Talking to the MRI nurse about why we were there (Laura wasn’t in the room) and how the person I knew three years ago is NOT the same kid I see every day now. I want her back, if possible. If it’s not possible, I want her to be getting through this life far better than she is right now.

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