I was checking out my “site stats” this morning–it’s always so weird to me that people actually READ my blog (and some even FOLLOW ME?!) and I looked at the search terms that people used to find me. Most still revolve around some form of Hershey Feeding Clinic. I’m happy about that, because we had such a wonderful experience there. But something that saddened me was the following search:
“scared about being mom to baby with special needs”
Oh, Honey! I’ve been there. I AM there sometimes! Feeling so inadequate to meet the needs of someone special. Feeling like a complete and utter failure. Feeling scared that I won’t be able to “rise to the challenge” of what my child needs. Scared of the sometimes-icky things that one with a special needs baby needs to deal with (infant colostomy, anyone? g-tubes anyone? eye-care after surgery anyone?)
You are NOT ALONE. Not one little bit. Most moms of special needs kids that I know have two needs–to find someone to talk to about their experiences and find camaraderie, and to feel like they can give back–make the fact that their child has “issues” (whatever they may be) MEAN something. That it’s not just me in the trenches every day for no reason.
Let me tell you, the day I found another mom whose son was blind AND autistic I was almost crying with relief. Literally. I wasn’t alone. I knew moms of blind kids. I knew moms of autistic kids. But oh, the combination of the two! AND her kid was a couple of years older, so she understood where I was. She could illuminate the path ahead a bit. A BIT.
So, Scared Mom, please Google (or Bing or Yahoo, whatever) your child’s special needs and the words “support” or “blog”. We are out there. We would LOVE to talk. It’s still going to be scary. Not having a healthy child is often scary. But you are not alone.
And for those of you considering Hershey Feeding Clinic–DO IT. It’s amazing, life changing and WORTH IT.